About NORD
The National Organization for Rare Disorders (NORD) is the leading independent nonprofit organization representing all patients and families affected by rare diseases. Come join our team and be part of the transformation and acceleration of research, and the development of evidence-based policy, care support and awareness campaigns to improve the lives of the 30 million Americans impacted by rare diseases. We offer a competitive compensation and benefits package along with a collaborative work atmosphere, opportunities for career growth and development and flexible telecommuting options. Learn more at www.rarediseases.org.
Position Summary
NORD has an exciting opportunity for a Medical Affairs Assistant to work collaboratively with the Rare Disease Centers of Excellence Team to provide ongoing support to the Rare Disease Center of Excellence Working Groups. Each Working Group is focused on addressing a high-priority unmet need related to rare disease care and will work collaboratively to develop solutions that can be leveraged across the network, and potentially beyond, for the benefit of patients with rare diseases.
The NORD Rare Disease Centers of Excellence Program brings together teams of clinical experts in a nationwide network of cutting-edge facilities, with the goal to provide standards of specialized care and disease management for people living with rare disease and their families and accelerate rare disease research.
This position is ideal for a college graduate pursuing professional experience before applying to medical or graduate school.
Essential Duties and Responsibilities
Assist and support the day-to-day operations of the Rare Disease Centers of Excellence Working Groups:
- Assist working group co-chairs to schedule virtual monthly meetings and prepare meeting agendas
- Provide logistical support to co-chairs and working group members
- Attend virtual meetings and follow-up with meeting notes, including action items
- Perform literature searches as needed to support working groups' efforts or initiatives
- Execute focused systematic internet searches as needed by working groups
- Provide technical support to co-chairs and working group members as pertains to use of the collaborative platform
- Work with co-chairs to manage working group projects, deliverables, and metrics effectively
- Assist co-chairs with preparation of quarterly reports on working groups activities and progress
- Perform other duties and functions as assigned.
Education/Experience
Bachelor's degree in a relevant field required
Previous experience or knowledge of rare diseases, experience working collaboratively in committees or working groups, experience performing medical or scientific literature searches and/or focused internet searches is required
Knowledge, Skills and Abilities
Strong interpersonal and relationship building skills
Excellent verbal and written communication skills
Superior organizational and time management skills
Exceptional troubleshooting and conflict resolution skills
Proficient in Microsoft Office; basic familiarity with virtual meeting platforms
Flexible and able to prioritize new tasks
Adept at working virtually as part of team
Some knowledge of medical disease terms preferred
Working Conditions
Position will be primarily telecommuting with minimal travel.
Reasonable accommodations may be made to enable individuals with disabilities to perform the essential functions.
NORD is an equal opportunity employer. All applicants will be considered for employment without attention to race, color, religion, sex, sexual orientation, gender identity, national origin, veteran, or disability status.
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